CASK disorders have no treatments and no cure and every year children pass away from the effects of this ultra-rare disease. CASK Research UK was created by the parent of seven year old Sarah who lives in Hampshire, England. The charity is run by volunteer supporters, some of whom are also caring for a child with CASK.<\/p>
<\/p>
\"Our children are dying and there are no treatments\"<\/p><\/blockquote>
<\/p>
CASK Research UK works alongside three other CASK non-profits around the world, which are all driven by parents fuelled by a passion to save their children and create a better future for the children that continue to be born with a CASK mutation. The CASK Coalition, the name for the group of collaborative charities, shares the dragonfly mascot 'Bella', a symbol of fragility and beauty, features synonymous with our children, whilst also raising awareness of the dragonfly shaped cerebellum often found in our children.<\/p>"},"textColor":{"id":97667254,"value":"#{feature.text.color}"}}}],"properties":{"title":{"id":97664490,"value":"Our ambassadors Joanne and Alice, running one of their many races"},"backgroundColor":{"id":97664492,"value":"#{feature.background.color}"},"padding":{"id":97664496,"value":"6"},"fullWidth":{"id":97664497,"value":"0"},"fullBackgroundColor":{"id":97664498,"value":"#{feature.fullBackground.color}"},"published":{"id":97664499,"value":"1"},"conditions":{"id":97664500,"value":"[]"},"direction":{"id":97667245,"value":"column"},"icon":{"id":97667246,"value":null},"textColor":{"id":97667247,"value":"#{feature.text.color}"},"buttonText":{"id":97667248,"value":null},"copy":{"id":97667249,"value":"
Chasing a cure...<\/h2>
CASK disorders have no treatments and no cure and every year children pass away from the effects of this ultra-rare disease. CASK Research UK was created by the parent of seven year old Sarah who lives in Hampshire, England. The charity is run by volunteer supporters, some of whom are also caring for a child with CASK.<\/p>
<\/p>
\"Our children are dying and there are no treatments\"<\/p><\/blockquote>
<\/p>
CASK Research UK works alongside three other CASK non-profits around the world, which are all driven by parents fuelled by a passion to save their children and create a better future for the children that continue to be born with a CASK mutation. The CASK Coalition, the name for the group of collaborative charities, shares the dragonfly mascot 'Bella', a symbol of fragility and beauty, features synonymous with our children, whilst also raising awareness of the dragonfly shaped cerebellum often found in our children.<\/p>"},"template":{"id":97667250,"value":"feature"}}},{"id":4131507,"type":"row","published":1,"size":{"x":12,"y":0},"order":2,"items":[{"id":4131541,"type":"pod","published":1,"size":{"x":12,"y":0},"order":0,"items":[],"properties":{"title":{"id":97666452,"value":null},"copy":{"id":97666453,"value":null},"media":{"id":97666454,"value":"image"},"image":{"id":97666455,"value":"{\"src\":\"https:\\\/\\\/images.podos.io\\\/yvfu51xr7x5xtxp6v1ledphgufwbskxadlccvhfyzjtfr1gu.jpeg.jpg?w=auto&h=auto\",\"alt\":\"\"}"},"video":{"id":97666456,"value":"#{video.default}"},"autoplayInBackground":{"id":97666457,"value":"1"},"titleSize":{"id":97666458,"value":"1"},"overlay":{"id":97666459,"value":"1"},"href":{"id":97666460,"value":"#"},"borderRadius":{"id":97666461,"value":"#{image.border.radius}"},"overlayOpacity":{"id":97666462,"value":"0"},"overlayColors":{"id":97666463,"value":null},"overlayDirection":{"id":97666464,"value":"90"},"padding":{"id":97666466,"value":"6"},"fullWidth":{"id":97666467,"value":"0"},"fullBackgroundColor":{"id":97666468,"value":"#fff0"},"published":{"id":97666469,"value":"1"},"conditions":{"id":97666470,"value":"[]"},"ratio":{"id":97666471,"value":"short"},"template":{"id":97667260,"value":"pod"}}},{"id":4131555,"type":"textBlock","published":1,"size":{"x":12,"y":0},"order":1,"items":[],"properties":{"padding":{"id":97667261,"value":"2"},"html":{"id":97667262,"value":"
What we strive for...<\/h2>
Our products reflect our core values\u2014collaboration, joy, honesty, and awareness. Every purchase helps spread our message and make a real impact. 100% of profits go directly to where they matter most\u2014supporting families and funding vital scientific and clinical research to advance treatments for CASK disorders.<\/p>"},"textColor":{"id":97667263,"value":"#{feature.text.color}"}}}],"properties":{"icon":{"id":97664660,"value":null},"title":{"id":97664661,"value":"Our Values"},"backgroundColor":{"id":97664663,"value":"#{feature.background.color}"},"padding":{"id":97664667,"value":"6"},"fullWidth":{"id":97664668,"value":"0"},"fullBackgroundColor":{"id":97664669,"value":"#{feature.fullBackground.color}"},"published":{"id":97664670,"value":"1"},"conditions":{"id":97664671,"value":"[]"},"direction":{"id":97667255,"value":"column"},"textColor":{"id":97667256,"value":"#{feature.text.color}"},"buttonText":{"id":97667257,"value":null},"copy":{"id":97667258,"value":"
What we strive for...<\/h2>
Our products reflect our core values\u2014collaboration, joy, honesty, and awareness. Every purchase helps spread our message and make a real impact. 100% of profits go directly to where they matter most\u2014supporting families and funding vital scientific and clinical research to advance treatments for CASK disorders.<\/p>"},"template":{"id":97667259,"value":"feature"}}},{"id":4131510,"type":"banner","published":1,"size":{"x":12,"y":0},"order":3,"items":[],"properties":{"type":{"id":97664705,"value":"slim"},"title":{"id":97664706,"value":"An interview with our founder"},"copy":{"id":97664707,"value":"Learn about Laura's journey from a rare disease mum to the leader of a patient advocate group"},"titleColor":{"id":97664708,"value":"#{banner.title.color}"},"titleBackground":{"id":97664709,"value":"#{banner.title.background.color}"},"copyColor":{"id":97664710,"value":"#{banner.copy.color}"},"copyBackground":{"id":97664711,"value":"#{banner.copy.background.color}"},"contentWidth":{"id":97664712,"value":"95%"},"textShadow":{"id":97664713,"value":"#{banner.text.shadow}"},"borderRadius":{"id":97664714,"value":"0px"},"buttonBorderRadius":{"id":97664715,"value":"#{button.border.radius}"},"buttonBackgroundColor":{"id":97664716,"value":"#{button.primary.color}"},"buttonStyle":{"id":97664717,"value":"secondary"},"buttonSize":{"id":97664718,"value":"standard"},"overlayOpacity":{"id":97664719,"value":"0.15"},"overlayColourStart":{"id":97664720,"value":"#000000"},"overlayColourEnd":{"id":97664721,"value":"#000000"},"overlayDirection":{"id":97664722,"value":"90"},"image":{"id":97664723,"value":"{\"src\":\"https:\\\/\\\/images.podos.io\\\/51jmzzgsymuo9ineto7wdjpg3ru4wmqgskce64u0kpkoak7h.jpeg.jpg?w=auto&h=auto&fy=0.25322872429019\",\"alt\":\"\"}"},"video":{"id":97664724,"value":null},"videoThumbnail":{"id":97664725,"value":null},"media":{"id":97664726,"value":"image"},"align":{"id":97664727,"value":"center"},"verticalAlignment":{"id":97664728,"value":"center"},"font":{"id":97664729,"value":"#{heading1.font}"},"actions":{"id":97664730,"value":"[{\"text\":\"Read Our Blog\",\"href\":\"\\\/blog\\\/\"}]"},"padding":{"id":97664732,"value":"6"},"fullWidth":{"id":97664733,"value":"1"},"fullBackgroundColor":{"id":97664734,"value":"#{banner.fullBackground.color}"},"published":{"id":97664735,"value":"1"},"conditions":{"id":97664736,"value":"[]"},"template":{"id":97668585,"value":"banner"}}},{"id":4131511,"type":"newsletterSubscribe","published":1,"size":{"x":12,"y":0},"order":4,"items":[],"properties":{"padding":{"id":97664737,"value":"6"},"spacing":{"id":97664738,"value":"64px"},"font":{"id":97664739,"value":"#{newsletter.title.font}"},"title":{"id":97664740,"value":"Don't miss out."},"copy":{"id":97664741,"value":"Don't miss out on the latest product launches and updates. Sign up to our newsletter"},"stacked":{"id":97664742,"value":"0"},"backgroundColor":{"id":97664743,"value":"#0000"},"textColor":{"id":97664744,"value":"#{newsletter.text.color}"},"primaryActions":{"id":97664745,"value":"0"},"formBorderRadius":{"id":97664746,"value":"#{form.border.radius}"},"buttonBorderRadius":{"id":97664747,"value":"#{button.border.radius}"},"borderRadius":{"id":97664748,"value":"#{newsletter.border.radius}"},"mailingList":{"id":97664749,"value":60160},"fullWidth":{"id":97664751,"value":"0"},"fullBackgroundColor":{"id":97664752,"value":"#EE027F"},"published":{"id":97664753,"value":"1"},"conditions":{"id":97664754,"value":"[]"},"template":{"id":97667264,"value":"newsletterSubscribe"}}}],"properties":{"title":{"id":97664442,"value":"About"},"isStorePage":{"id":97664443,"value":"1"},"description":{"id":97664444,"value":"CASK Research UK, registered charity England and Wales, is selling merchandise to fund vital research into CASK-related disorders."},"ogImage":{"id":97664445,"value":"https:\/\/images.podos.io\/uewfr16kiiwwl70bnern4sgxmjmtisypwo3ednpisei6gire.png.png?w=1200&h=auto"}},"labels":[],"published":1,"sitemap":1,"divisionId":383390,"edited":true}